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Thousands sign petition after mum shares image of girl's meningitis | Thousands sign petition after mum shares image of girl's meningitis |
(about 4 hours later) | |
A mother has shared an image of her daughter before her death from meningitis to back a campaign for vaccines to be given to all children. | A mother has shared an image of her daughter before her death from meningitis to back a campaign for vaccines to be given to all children. |
Faye Burdett, aged two, from Maidstone, Kent died on Valentine's Day after fighting the infection for 11 days. | Faye Burdett, aged two, from Maidstone, Kent died on Valentine's Day after fighting the infection for 11 days. |
Her family said they were enduring "a pain you cannot describe" after the toddler contracted meningitis B. | Her family said they were enduring "a pain you cannot describe" after the toddler contracted meningitis B. |
Their photographs of Faye, including one of her in hospital, have been widely shared on social media. | Their photographs of Faye, including one of her in hospital, have been widely shared on social media. |
'Massive operation' | 'Massive operation' |
The most widely shared image shows her covered in a rash from the infection lying in her hospital bed. | The most widely shared image shows her covered in a rash from the infection lying in her hospital bed. |
More than 331,000 people have signed a petition calling for the NHS vaccination programme to be widened to all children. | |
A vaccine to protect against meningitis B became available on the NHS for babies in September but parents who want to have older children vaccinated must pay privately. | |
"We campaign for change in her memory," said Faye's mother, Jenny. | |
"Faye was taken to A&E with a rash on her forehead. She was then transferred by South Bank Retrieval Service to Evelina Children's Hospital, where her heart stopped in the ambulance. | "Faye was taken to A&E with a rash on her forehead. She was then transferred by South Bank Retrieval Service to Evelina Children's Hospital, where her heart stopped in the ambulance. |
"They revived her and spent hours working on stabilising her. | "They revived her and spent hours working on stabilising her. |
"We were given a 1% survival chance but she proved them wrong and carried on fighting. | "We were given a 1% survival chance but she proved them wrong and carried on fighting. |
"After a few days she seemed to have turned a corner, but the sepsis started to affect her more." | |
It was then that doctors presented the family with an option of amputation. | |
"The extent of removal was massive, full leg amputation and one arm and plastic surgery," Jenny said. | |
"We had to make the decision, a massive operation and she may die or we let her go peacefully on her own accord. | "We had to make the decision, a massive operation and she may die or we let her go peacefully on her own accord. |
"We decided the latter and then watched our little girl slip away." | |
Charlene Reed, who set up a JustGiving page in memory of Faye, to raise money for the Evelina hospice, said Faye's mother shared the picture to raise awareness. | |
"It's not nice, but it is reality. It's what this disease did to Faye which made her sadly lose her life on Sunday," she said. | |
Sue Davie, chief executive of Meningitis Now, said: "Although the introduction of the Men B vaccine on the childhood immunisation scheme for young babies was a momentous achievement, saving thousands of lives, there are still so many, like Faye, left unprotected. | Sue Davie, chief executive of Meningitis Now, said: "Although the introduction of the Men B vaccine on the childhood immunisation scheme for young babies was a momentous achievement, saving thousands of lives, there are still so many, like Faye, left unprotected. |
"We continue to campaign to see the Men B vaccine rolled out, particularly to at-risk groups, to insure a future where no-one in the UK losses their life to meningitis." | |
A Department of Health spokesman said: "When any new immunisation programme is introduced, there has to be a date to determine eligibility. A decision based on the best independent clinical recommendation to ensure we can protect those children most at risk of Men B. | |
"When our nationwide Men B vaccination programme was introduced last year, England became the first country to protect our babies from this devastating disease." | |
What is meningitis B? | What is meningitis B? |