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Doctors excited by cystic fibrosis therapy | Doctors excited by cystic fibrosis therapy |
(about 17 hours later) | |
A therapy that corrects the underlying cause of cystic fibrosis could transform treatment, doctors have said. | A therapy that corrects the underlying cause of cystic fibrosis could transform treatment, doctors have said. |
Only half of people with cystic fibrosis make it into their 40s. | Only half of people with cystic fibrosis make it into their 40s. |
Defects in their DNA mean they produce thick, sticky mucus that clogs and inexorably damages their lungs. | Defects in their DNA mean they produce thick, sticky mucus that clogs and inexorably damages their lungs. |
Data presented at the North American Cystic Fibrosis Conference shows that a drugs combination - which enables production of runnier mucus - slows the irreversible decline in lung function. | Data presented at the North American Cystic Fibrosis Conference shows that a drugs combination - which enables production of runnier mucus - slows the irreversible decline in lung function. |
Errors in people's DNA - or genetic code - can lead to defective microscopic machinery in the lungs. | Errors in people's DNA - or genetic code - can lead to defective microscopic machinery in the lungs. |
Instead of producing a normal protective layer of mucus, they get the balance of salt and water wrong and it becomes damaging. | Instead of producing a normal protective layer of mucus, they get the balance of salt and water wrong and it becomes damaging. |
Antibiotics help prevent infections settling in and drugs can loosen the mucus, but nothing deals with the fundamental problem for most patients. | Antibiotics help prevent infections settling in and drugs can loosen the mucus, but nothing deals with the fundamental problem for most patients. |
'Very reassuring' | 'Very reassuring' |
Early studies had suggested the drugs lumacaftor and ivacaftor could alter the microscopic machinery so they made runnier mucus. | Early studies had suggested the drugs lumacaftor and ivacaftor could alter the microscopic machinery so they made runnier mucus. |
Those studies followed patients for just 24 weeks, but now doctors have nearly two years of data on them. | Those studies followed patients for just 24 weeks, but now doctors have nearly two years of data on them. |
The drug combination is clearly not a cure, but the researchers said the untreated patients would expect their lung function to decline by 2.3% a year, but this fell to 1.3% in those given the therapy. | The drug combination is clearly not a cure, but the researchers said the untreated patients would expect their lung function to decline by 2.3% a year, but this fell to 1.3% in those given the therapy. |
They were also less likely to need hospital treatment. | They were also less likely to need hospital treatment. |
Dr Michael Konstan, who led the trial from the Case Western Reserve University School of Medicine, said: "These data suggest that the benefits of lumacaftor/ivacaftor are sustained and indicate that the medicine may modify the progression of cystic fibrosis lung disease by treating its underlying cause." | Dr Michael Konstan, who led the trial from the Case Western Reserve University School of Medicine, said: "These data suggest that the benefits of lumacaftor/ivacaftor are sustained and indicate that the medicine may modify the progression of cystic fibrosis lung disease by treating its underlying cause." |
Dr Stuart Elborn, from the Royal Brompton Hospital in London where some of the patients were treated, told the BBC News website: "This is an incremental advance rather than a breakthrough, but it is very reassuring that the effect does not wear off. | Dr Stuart Elborn, from the Royal Brompton Hospital in London where some of the patients were treated, told the BBC News website: "This is an incremental advance rather than a breakthrough, but it is very reassuring that the effect does not wear off. |
"I'm really excited by the therapy and also the pipeline of other powerful drugs that could get us closer to a cure." | "I'm really excited by the therapy and also the pipeline of other powerful drugs that could get us closer to a cure." |
The therapy is not available on the NHS after it was rejected by funding bodies in England and Scotland. | The therapy is not available on the NHS after it was rejected by funding bodies in England and Scotland. |
It costs more than £100,000 a year for each patient. | It costs more than £100,000 a year for each patient. |
There are also many types of error in the DNA that can culminate in cystic fibrosis. | There are also many types of error in the DNA that can culminate in cystic fibrosis. |
This treatment combination should work on around half of patients, while one of the drugs on its own corrects a small proportion of errors. | This treatment combination should work on around half of patients, while one of the drugs on its own corrects a small proportion of errors. |
New treatments are still required for the remaining patients. | New treatments are still required for the remaining patients. |
One in every 2,500 babies in the UK has cystic fibrosis. | One in every 2,500 babies in the UK has cystic fibrosis. |
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