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| Terminally ill boy 'may die before vital car funding' | Terminally ill boy 'may die before vital car funding' |
| (about 20 hours later) | |
| A terminally ill boy may die before he qualifies for funding to help improve his quality of life, his parents have said. | |
| Stanley Murphy, who is nearly two, has Tay-Sachs disease which means he is unable to move and has seizures. | Stanley Murphy, who is nearly two, has Tay-Sachs disease which means he is unable to move and has seizures. |
| His parents said they need a specially adapted car to take him out but warned he may not live until the funding threshold of three years old. | His parents said they need a specially adapted car to take him out but warned he may not live until the funding threshold of three years old. |
| The Department of Work and Pensions said it cannot make exceptions. | The Department of Work and Pensions said it cannot make exceptions. |
| His parents, from Newton Abbot in Devon, had applied for funding to buy a car capable of carrying a wheelchair under the Disability Living Allowance mobility scheme. | His parents, from Newton Abbot in Devon, had applied for funding to buy a car capable of carrying a wheelchair under the Disability Living Allowance mobility scheme. |
| But their bid was rejected because of Stanley being too young to qualify. | But their bid was rejected because of Stanley being too young to qualify. |
| Emma Murphy said: "I don't think the people who make these decisions have a clue what life is really like when you have a poorly child. | Emma Murphy said: "I don't think the people who make these decisions have a clue what life is really like when you have a poorly child. |
| "Stanley might not live until he is three so to be told that he can't get this help that he needs until he is three is not right. | "Stanley might not live until he is three so to be told that he can't get this help that he needs until he is three is not right. |
| "There are lots of children who unfortunately have very short lives, then you don't have time on your side. | "There are lots of children who unfortunately have very short lives, then you don't have time on your side. |
| "You want to make the best out of every day and to get out and about is a massive part of that. | "You want to make the best out of every day and to get out and about is a massive part of that. |
| "We want to give him the quality of life he deserves while he is with us." | "We want to give him the quality of life he deserves while he is with us." |
| A spokeswoman for the Department of Work and Pensions said they were "unable to consider entitlement" as the age limit is the law and not a regulation. | A spokeswoman for the Department of Work and Pensions said they were "unable to consider entitlement" as the age limit is the law and not a regulation. |
| She said applications can be made three months before the child's third birthday so that if approved the benefit can be paid on the day of the birthday. | She said applications can be made three months before the child's third birthday so that if approved the benefit can be paid on the day of the birthday. |
| Tay-Sachs disease | Tay-Sachs disease |
| Source: NHS | Source: NHS |
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