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Alfie Evans: Judge to decide sick boy's treatment Alfie Evans: Continuing life support 'futile'
(about 3 hours later)
The parents of a seriously ill 20-month-old boy with a mystery condition are in court in a row with medics over life-support treatment. The father of a seriously ill 20-month-old boy broke down in tears as a court was told further hospital treatment would be "futile".
Tom Evans and Kate James, both 20 and from Bootle, Liverpool, want to take their son Alfie abroad for treatment.Tom Evans and Kate James, both 20 and from Bootle, Liverpool, want to take their son Alfie abroad for treatment.
But doctors in the UK say continuing life-support treatment is not in the child's best interests. The hearing to decide if life support should be withdrawn from Alfie, who has a mystery illness, was stopped briefly while Mr Evans was comforted by family.
He is in a "semi-vegetative state" with a degenerative neurological condition that has not been precisely diagnosed. UK doctors said continuing treatment was unkind, the court heard.
Supporters wearing T-shirts saying "release Alfie Evans" are also at the hearing at Liverpool Family Court, which was briefly stopped earlier after Mr Evans broke down in tears. Alfie is in a "semi-vegetative state" and has a degenerative neurological condition that has not been precisely diagnosed.
Despite mediation between the parents and specialists caring for Alfie at Alder Hey Children's Hospital in Liverpool, a two-day hearing at the city's family court will decide the child's fate. 'Catastrophic brain degradation'
Mr Justice Hayden, who told the court he himself had had the "privilege" of visiting Alfie in hospital, said: "Everybody in this court shares the same objectives, everybody wants the best for Alfie."
His parents believe he responds to them, but Liverpool Family Court heard any movements by the child are spontaneous seizures as a result of touching.
Michael Mylonas QC, representing the hospital, said: "One of the problems of this case is they look at him and, barring the paraphernalia of breathing and feeding, he's a sweet, lovely, normal-looking boy who opens his eyes, [and] will smile..."
Mr Mylonas said scans of Alfie had shown "catastrophic degradation of his brain tissue" which was getting worse.
He said that, at the request of the parents, three medical experts from the Vatican-linked Bambino Gesu Paediatric Hospital in Rome had visited Alfie in Alder Hey.
They had reached the same conclusions in terms of the "complete futility" of trying to find a cure or alleviating his seizures.
The Italian experts had suggested operations to help Alfie breathe and feed and keep him alive for an "undefined period".
But Dr Martin Samuels, an expert in the ventilation of children, believed such operations were "inappropriate".
"I think we are all agreed from the medical perspective that life expectancy is limited" he said.
Supporters wearing T-shirts saying "release Alfie Evans" are also at the two-day hearing.
Despite mediation between the parents and specialists caring for Alfie at Alder Hey Children's Hospital in Liverpool, the city's family court will decide the child's fate.
It follows a preliminary hearing at the High Court in London last year when Mr Justice Hayden said everyone wanted what was best for Alfie, but ruled he would make a decision if agreement could not be reached after hearing from both sides.It follows a preliminary hearing at the High Court in London last year when Mr Justice Hayden said everyone wanted what was best for Alfie, but ruled he would make a decision if agreement could not be reached after hearing from both sides.
Doctors at Alder Hey believe they should stop "mechanical ventilation" for Alfie, who was born on 9 May 2016. Doctors at Alder Hey believe they should stop "mechanical ventilation" for Alfie, who was born in May 2016.
But Alfie's parents hope that specialists at the Bambino Gesu Paediatric Hospital in Rome will be able to pinpoint what is wrong with their child.