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Baby born with heart outside body moved to Nottingham | Baby born with heart outside body moved to Nottingham |
(about 4 hours later) | |
A baby born with her heart outside her body has been moved to a hospital closer to her home. | A baby born with her heart outside her body has been moved to a hospital closer to her home. |
Vanellope Hope Wilkins was born in November and has had three operations to place her heart back in her chest at Glenfield Hospital, in Leicester. | Vanellope Hope Wilkins was born in November and has had three operations to place her heart back in her chest at Glenfield Hospital, in Leicester. |
The six-month-old was transferred to the Queen's Medical Centre (QMC), near to where the family live in Nottingham. | The six-month-old was transferred to the Queen's Medical Centre (QMC), near to where the family live in Nottingham. |
Mother Naomi Findlay said she had "longed" to have her daughter in a hospital that was closer. | Mother Naomi Findlay said she had "longed" to have her daughter in a hospital that was closer. |
"[Vanellope] is coming on in leaps and bounds... she's very feisty, she's also very vocal, if she's not happy she lets everybody know about it," she said. | "[Vanellope] is coming on in leaps and bounds... she's very feisty, she's also very vocal, if she's not happy she lets everybody know about it," she said. |
The family said the constant travel from Nottingham to Leicester had been hard, especially as they have other children. | The family said the constant travel from Nottingham to Leicester had been hard, especially as they have other children. |
"It was tough," said dad Dean Wilkins. | "It was tough," said dad Dean Wilkins. |
"You've got to look at all different things, if you're working, not working, if you've got the money or not." | "You've got to look at all different things, if you're working, not working, if you've got the money or not." |
Vanellope had the extremely rare condition, ectopia cordis, of which there are only a few cases per million births - most are stillborn. | Vanellope had the extremely rare condition, ectopia cordis, of which there are only a few cases per million births - most are stillborn. |
Glenfield Hospital said it did not know of any other case in the UK where the baby survived following an operation to place the heart back inside the body. | Glenfield Hospital said it did not know of any other case in the UK where the baby survived following an operation to place the heart back inside the body. |
Dr Meissa Osman, paediatric registrar, at Leicester Royal Infirmary, said the transfer to the QMC was "uneventful". | Dr Meissa Osman, paediatric registrar, at Leicester Royal Infirmary, said the transfer to the QMC was "uneventful". |
"She slept all the way through so we're happy..." she said. "We're very proud to be involved in her care." | "She slept all the way through so we're happy..." she said. "We're very proud to be involved in her care." |
Vanellope was delivered by Caesarean section on 22 November in order to reduce the chances of infection and damage to the heart. | Vanellope was delivered by Caesarean section on 22 November in order to reduce the chances of infection and damage to the heart. |
There were about 50 medical staff present including obstetricians, heart surgeons, anaesthetists, neonatologists and midwives. | There were about 50 medical staff present including obstetricians, heart surgeons, anaesthetists, neonatologists and midwives. |
She will need another operation to create a breastbone at some point in the future. | She will need another operation to create a breastbone at some point in the future. |
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