This article is from the source 'guardian' and was first published or seen on . It last changed over 40 days ago and won't be checked again for changes.

You can find the current article at its original source at https://www.theguardian.com/society/2018/jul/05/billy-caldwell-heads-home-amid-doubts-over-cannabis-oil-access-northern-irleand-medication-epilepsy

The article has changed 5 times. There is an RSS feed of changes available.

Version 1 Version 2
Billy Caldwell heads home with doubts over cannabis oil access Billy Caldwell licensed for cannabis oil use in Northern Ireland
(about 2 hours later)
The 12-year-old boy with epilepsy whose condition sparked a national conversation on the UK’s drug policy is heading home amid uncertainty about access to his cannabis-based medication. The 12-year-old boy with epilepsy whose condition sparked a national conversation on the UK’s drugs policy is heading home to County Tyrone, where he will be legally treated with a cannabis-based medicine.
After public outrage over the confiscation of Billy Caldwell’s medicine at Heathrow airport, the home secretary, Sajid Javid, granted a licence for cannabis oil to be administered to the boy at home. But Billy’s family, including his mother, Charlotte Caldwell, say there is no clarity on when the confiscated medicine will be released to him in Northern Ireland. After public outrage over the confiscation of Billy Caldwell’s medicine at Heathrow airport, the home secretary, Sajid Javid, granted a licence for cannabis oil to be administered to the boy at home.
“While the Home Office in London and Charlotte’s MP, Órfhlaith Begley, have done an amazing job in getting us this far, the Department of Health in Northern Ireland have not confirmed that Billy’s medication will be available,” said a spokesman. Following uncertainty over whether the Northern Irish authorities would follow the Home Office’s lead, it was announced on Thursday that the region’s Department of Health had issued an emergency licence so he could continue to be treated at home after the family’s return to Castlederg from London.
The Home Office will give the captain of the flight being taken by the family “secure custody” of the medicine and he must give it to authorities in Belfast upon arrival. “The Department of Health yesterday received an emergency licence application from Belfast Trust clinicians regarding medicinal cannabis use for Billy Caldwell,” a department spokeswoman said.
Last year, Billy became the first child to be prescribed medicinal cannabis oil on the NHS. He then reportedly went 300 days without a seizure. But the Home Office later ordered his GP not to renew the prescription as it contravened UK law. “An emergency licence has today been issued by the department, replicating the licence issued last month by the Home Office for treatment at Chelsea and Westminster Hospital in London.
“We have also been in discussions with the Home Office to finalise arrangements for the immediate transportation of Billy’s medicine from London to the Belfast Trust,” she added.
Speaking earlier in the week, Caldwell said her son was longing to return home. “Billy has been amazingly resilient throughout,” she said. “He’s autistic, and everything that has been going on – no regularity, no familiar surroundings – are beginning to take their toll on him ... He needs his toys, his garden, the things he’s used to. I need to see him happy and well.”
In 2017, Billy became the first child to be prescribed medicinal cannabis oil on the NHS. He then reportedly went 300 days without a seizure. But the Home Office later ordered his GP not to renew the prescription as it contravened UK law.
This prompted his mother to take him to Canada to procure the medicine, but it was seized by border guards upon their return to Britain.This prompted his mother to take him to Canada to procure the medicine, but it was seized by border guards upon their return to Britain.
The confiscation led to MPs criticising UK cannabis laws, which one said “can’t be right, sensible or humane”, and to call for urgent reform.The confiscation led to MPs criticising UK cannabis laws, which one said “can’t be right, sensible or humane”, and to call for urgent reform.
Billy’s health deteriorated and within days he was taken to hospital in a “life-threatening” condition after his seizures returned, forcing Javid to issue an emergency licence so that clinicians could treat the boy with cannabis oil.Billy’s health deteriorated and within days he was taken to hospital in a “life-threatening” condition after his seizures returned, forcing Javid to issue an emergency licence so that clinicians could treat the boy with cannabis oil.
His seizures subsided as a result and Javid then issued a similar licence to Alfie Dingley, another child whose plight led to calls for the government to adopt a more compassionate approach.His seizures subsided as a result and Javid then issued a similar licence to Alfie Dingley, another child whose plight led to calls for the government to adopt a more compassionate approach.
That move led to pleas from families of other children with similar conditions to be granted access to the medicinal cannabis. There are about 20,000 such children who do not respond to the usual medication prescribed by the NHS.That move led to pleas from families of other children with similar conditions to be granted access to the medicinal cannabis. There are about 20,000 such children who do not respond to the usual medication prescribed by the NHS.
Javid then announced that the Advisory Council on the Misuse of Drugs would assess whether cannabis should be reclassified – a move which would make it significantly easier for research to be conducted on the drug.Javid then announced that the Advisory Council on the Misuse of Drugs would assess whether cannabis should be reclassified – a move which would make it significantly easier for research to be conducted on the drug.
The home secretary said if the review identified significant medical and therapeutic benefits, then cannabis could be rescheduled for medicinal use.The home secretary said if the review identified significant medical and therapeutic benefits, then cannabis could be rescheduled for medicinal use.
Caldwell always made clear that she saw Billy’s case through the prism of a wider effort for children to gain access to useful medicines that the UK’s drug scheduling prevents. But she said questions remained over their own access, despite Javid’s blessing. Caldwell always made clear that she saw Billy’s case through the prism of a wider effort for children to gain access to useful medicines that the UK’s drug scheduling prevents.
“While we have been advised that the captain of our flight will be given secure custody of the original larger quantity of Bill’s medicinal cannabis confiscated at Heathrow on 11 June, we are also advised that the meds will be handed directly to the Department of Health in Belfast,” a family spokesman said.
The Department of Health said on Wednesday that it was “actively working for a timely resolution to this matter”.
CannabisCannabis
EpilepsyEpilepsy
HealthHealth
Northern IrelandNorthern Ireland
DrugsDrugs
newsnews
Share on FacebookShare on Facebook
Share on TwitterShare on Twitter
Share via EmailShare via Email
Share on LinkedInShare on LinkedIn
Share on PinterestShare on Pinterest
Share on Google+Share on Google+
Share on WhatsAppShare on WhatsApp
Share on MessengerShare on Messenger
Reuse this contentReuse this content