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Claire Wineland: Cystic fibrosis activist dies at 21 | Claire Wineland: Cystic fibrosis activist dies at 21 |
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A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. | A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. |
Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. | Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. |
Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. | Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. |
Her foundation said she had died peacefully, surrounded by family. | Her foundation said she had died peacefully, surrounded by family. |
In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed." | In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed." |
At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. | At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. |
"Life isn't just about being happy... It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. | "Life isn't just about being happy... It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. |
Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. | |
The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. | The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. |
In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. | In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. |
"I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. I'm grateful for the chance to keep being a person," she said. | "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. I'm grateful for the chance to keep being a person," she said. |
Her organs were made available for transplant. | Her organs were made available for transplant. |
"Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. | "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. |
Cystic fibrosis is a genetic condition with no known cure. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. | Cystic fibrosis is a genetic condition with no known cure. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. |
The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. | The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. |
Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. | Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. |
She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. | She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. |
However, her illness forced her to leave the platform in 2017. | However, her illness forced her to leave the platform in 2017. |
Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. | Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. |
She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. | She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. |
"I've struggled more with guys, depression drugs, family and career than I ever have with my illness. I'm not an innocent and I'm not a child," she wrote in March. | "I've struggled more with guys, depression drugs, family and career than I ever have with my illness. I'm not an innocent and I'm not a child," she wrote in March. |
You may also be interested in: | You may also be interested in: |