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| Coronavirus: Protecting the 'one in a million' girl | Coronavirus: Protecting the 'one in a million' girl |
| (about 4 hours later) | |
| "We didn't really want to take another roll of the dice if we're honest." | "We didn't really want to take another roll of the dice if we're honest." |
| Janine Price - and her family - know how to beat the odds. | |
| It took 22 different medical professionals to diagnose their 14-year-old daughter Bex with a rare, life-threatening condition. | It took 22 different medical professionals to diagnose their 14-year-old daughter Bex with a rare, life-threatening condition. |
| Now, three years on from when she was rushed to Great Ormond Street Hospital by ambulance, the family are facing up to the new risk posed by coronavirus. | Now, three years on from when she was rushed to Great Ormond Street Hospital by ambulance, the family are facing up to the new risk posed by coronavirus. |
| Bex has pulmonary hypertension, which affects her heart and lungs. | Bex has pulmonary hypertension, which affects her heart and lungs. |
| In December 2016 she was so unwell she couldn't even be given a general anaesthetic before emergency treatment to save her life. | In December 2016 she was so unwell she couldn't even be given a general anaesthetic before emergency treatment to save her life. |
| The family, from Barry, in south Wales, spent Christmas in hospital that year, and she now relies on intravenous medicine 24/7. | |
| 'Traumatic' treatments | 'Traumatic' treatments |
| "I do think I'm one of the unlucky lot, but it's okay for me now because it's just become a thing and I'm okay with that," Bex said. | "I do think I'm one of the unlucky lot, but it's okay for me now because it's just become a thing and I'm okay with that," Bex said. |
| "Since I've been on my medication I've been doing a lot better and I can do things with my brother - we play basketball a lot in the garden. | "Since I've been on my medication I've been doing a lot better and I can do things with my brother - we play basketball a lot in the garden. |
| "But because of my condition, we decided to isolate quite a bit earlier than everyone else….and it's making us go a little bit stir crazy." | "But because of my condition, we decided to isolate quite a bit earlier than everyone else….and it's making us go a little bit stir crazy." |
| Mrs Price said: "We've been told the rarity of Bex's condition genuinely makes her one in a million. | Mrs Price said: "We've been told the rarity of Bex's condition genuinely makes her one in a million. |
| "This girl of ours has been prodded, poked and gone through what are quite frankly traumatic experiences, especially a brain MRI, and yet she continues to smile, be funny, be positive and live her very best life. | "This girl of ours has been prodded, poked and gone through what are quite frankly traumatic experiences, especially a brain MRI, and yet she continues to smile, be funny, be positive and live her very best life. |
| "Bex is our inspiration - she truly amazes us. Her brother is too. It's an awful lot for him to deal with as well." | "Bex is our inspiration - she truly amazes us. Her brother is too. It's an awful lot for him to deal with as well." |
| Isolation for the Price family started early, on 13 March, as they were acutely aware that underlying health conditions can be fatal at the best of times, let alone in a pandemic. | Isolation for the Price family started early, on 13 March, as they were acutely aware that underlying health conditions can be fatal at the best of times, let alone in a pandemic. |
| Bex also needs regular blood tests which resulted in a makeshift 'drive through' experience recently. | Bex also needs regular blood tests which resulted in a makeshift 'drive through' experience recently. |
| "The Children's Hospital for Wales arranged for us to drive in at the side of the building so a nurse could take blood, but do it quickly and then head back in via a fire escape to minimise the number of people we came into contact with," Mrs Price said. | "The Children's Hospital for Wales arranged for us to drive in at the side of the building so a nurse could take blood, but do it quickly and then head back in via a fire escape to minimise the number of people we came into contact with," Mrs Price said. |
| "When Bex's glasses broke we couldn't just go to Specsavers, we had to leave the glasses on the bench outside for them to be repaired and returned to us. | "When Bex's glasses broke we couldn't just go to Specsavers, we had to leave the glasses on the bench outside for them to be repaired and returned to us. |
| "When the dog became unwell the other day we couldn't just take him to the vet we had to give him medication ourselves. | "When the dog became unwell the other day we couldn't just take him to the vet we had to give him medication ourselves. |
| "Life has really changed and it's the little things that are not so easy anymore." | "Life has really changed and it's the little things that are not so easy anymore." |
| Both Mrs Price and Bex's dad Gavin are teachers at a local college and are juggling looking after the children, working remotely and keeping their students motivated. | Both Mrs Price and Bex's dad Gavin are teachers at a local college and are juggling looking after the children, working remotely and keeping their students motivated. |
| Their son Sam, 13, is using isolation as inspiration for a video diary online, where Bex featured most recently as his makeshift barber. | Their son Sam, 13, is using isolation as inspiration for a video diary online, where Bex featured most recently as his makeshift barber. |
| He says he misses seeing his friends and not being able to just "pop to the shop" when he wants something. | He says he misses seeing his friends and not being able to just "pop to the shop" when he wants something. |
| 'Stolen' childhoods | 'Stolen' childhoods |
| Mrs Price said: "Sam is a complete and utter social animal - he has a fantastic group of friends, he's into his football, he's out all the time, so that was a real concern. | Mrs Price said: "Sam is a complete and utter social animal - he has a fantastic group of friends, he's into his football, he's out all the time, so that was a real concern. |
| "You do wonder about whether this childhood summer is being stolen away from them." | "You do wonder about whether this childhood summer is being stolen away from them." |
| Wales in Lockdown is on Monday 20 April at 20:30 BST on BBC One Wales and on the BBC iPlayer. | Wales in Lockdown is on Monday 20 April at 20:30 BST on BBC One Wales and on the BBC iPlayer. |