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| Version 0 | Version 1 |
|---|---|
| Exeter ME patient's hospital care changed after campaign | Exeter ME patient's hospital care changed after campaign |
| (3 months later) | |
| Alice Barrett was diagnosed with ME in November 2020 | Alice Barrett was diagnosed with ME in November 2020 |
| A hospital has updated a feeding plan for a woman with severe myalgic encephalomyelitis (ME). | A hospital has updated a feeding plan for a woman with severe myalgic encephalomyelitis (ME). |
| Alice Barrett, 25, is at the Royal Devon and Exeter Hospital (RDE) and cannot sit upright and feed herself. | Alice Barrett, 25, is at the Royal Devon and Exeter Hospital (RDE) and cannot sit upright and feed herself. |
| The change by the RDE came after her family raised concerns she could die from starvation if her treatment was not changed. | The change by the RDE came after her family raised concerns she could die from starvation if her treatment was not changed. |
| Ms Barrett's father Mark told BBC News: "We are so pleased they have listened and we hope it is not too late." | Ms Barrett's father Mark told BBC News: "We are so pleased they have listened and we hope it is not too late." |
| Ms Barrett was diagnosed with ME in November 2020 and had the disease moderately, before a major deterioration at the end of April 2022. | Ms Barrett was diagnosed with ME in November 2020 and had the disease moderately, before a major deterioration at the end of April 2022. |
| She was admitted to the RDE on 10 February. | She was admitted to the RDE on 10 February. |
| Her family said they had taken expert advice which said Ms Barrett should be tube fed lying down. | Her family said they had taken expert advice which said Ms Barrett should be tube fed lying down. |
| They urged the RDE Trust to deviate from a policy of tube feeding patients at an angle of 30 degrees to avoid choking. | They urged the RDE Trust to deviate from a policy of tube feeding patients at an angle of 30 degrees to avoid choking. |
| The trust said in a statement: "Our complete focus continues to be to provide Alice with the safest possible care. | The trust said in a statement: "Our complete focus continues to be to provide Alice with the safest possible care. |
| "Our clinical teams have worked closely with Alice and her family to carefully update her feeding plan, and we will be monitoring this closely over the coming days." | "Our clinical teams have worked closely with Alice and her family to carefully update her feeding plan, and we will be monitoring this closely over the coming days." |
| The family said on a petition page: "The trust's guidelines state that you have to be at least 30 degrees for NG tube feeding. | The family said on a petition page: "The trust's guidelines state that you have to be at least 30 degrees for NG tube feeding. |
| "They have now adapted their guidelines which should help Alice tolerate being feed. | "They have now adapted their guidelines which should help Alice tolerate being feed. |
| "Hopefully, the feeding plan we have now got in place Alice will be able to tolerate and she will become nutritionally stronger." | "Hopefully, the feeding plan we have now got in place Alice will be able to tolerate and she will become nutritionally stronger." |
| Mr Barrett said: "We have gone through 25 days of hell, I am physically and emotionally exhausted. | Mr Barrett said: "We have gone through 25 days of hell, I am physically and emotionally exhausted. |
| "We are so pleased that they have listened and we hope it is not too late." | "We are so pleased that they have listened and we hope it is not too late." |
| Follow BBC News South West on Twitter, Facebook and Instagram. Send your story ideas to spotlight@bbc.co.uk. | Follow BBC News South West on Twitter, Facebook and Instagram. Send your story ideas to spotlight@bbc.co.uk. |
| Related Topics | Related Topics |
| Devon | |
| Chronic fatigue syndrome | Chronic fatigue syndrome |
| Exeter | Exeter |