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Father fights to keep son alive Father fights to keep son alive
(41 minutes later)
A father is fighting a hospital's attempt to withdraw support keeping his baby son alive.A father is fighting a hospital's attempt to withdraw support keeping his baby son alive.
The one-year-old, known as Baby RB for legal reasons, was born with a rare, genetic muscle condition that makes it hard for him to breathe independently.The one-year-old, known as Baby RB for legal reasons, was born with a rare, genetic muscle condition that makes it hard for him to breathe independently.
His parents are going to High Court - the mother is reportedly supporting the hospital's bid.His parents are going to High Court - the mother is reportedly supporting the hospital's bid.
The father's lawyers argue that the boy's brain is unaffected, meaning he can see, hear, interact and play.The father's lawyers argue that the boy's brain is unaffected, meaning he can see, hear, interact and play.
Despite having to remain in hospital and being dependent on a ventilator to breathe, he enjoys having stories read to him and listening to music, they say.Despite having to remain in hospital and being dependent on a ventilator to breathe, he enjoys having stories read to him and listening to music, they say.
The lawyers are submitting video footage to the court, which they say shows him playing with his toys.The lawyers are submitting video footage to the court, which they say shows him playing with his toys.
'Tragic case''Tragic case'
But the hospital says that Baby RB's quality of life is so low that it would not be in his best interests to try to save him.But the hospital says that Baby RB's quality of life is so low that it would not be in his best interests to try to save him.
Baby RB was born with congenital myasthenic syndrome and has been in hospital since birth.Baby RB was born with congenital myasthenic syndrome and has been in hospital since birth.
Both parents, who are said to be "amicably separated", have spent long hours at their son's bedside.Both parents, who are said to be "amicably separated", have spent long hours at their son's bedside.
Christopher Cuddihee, a solicitor acting for the father, told The Sunday Telegraph: "This is a tragic case. The father feels very strongly that Baby RB has a quality of life that demands the trust should continue to provide life-sustaining treatment.Christopher Cuddihee, a solicitor acting for the father, told The Sunday Telegraph: "This is a tragic case. The father feels very strongly that Baby RB has a quality of life that demands the trust should continue to provide life-sustaining treatment.
"The father clearly adores his son and hopes to demonstrate to the court that the trust's application should be rejected.""The father clearly adores his son and hopes to demonstrate to the court that the trust's application should be rejected."
An estimated 300 people have CMS in the UK, with varying degrees of severity.An estimated 300 people have CMS in the UK, with varying degrees of severity.
Some who inherited the condition die soon after birth, while others can expect to live a relatively normal life with medication.