This article is from the source 'bbc' and was first published or seen on . The next check for changes will be
You can find the current article at its original source at https://www.bbc.com/news/articles/c863dqzzpz9o
The article has changed 2 times. There is an RSS feed of changes available.
Previous version
1
Next version
| Version 0 | Version 1 |
|---|---|
| Isle of Wight mufti day for student with brain tumour | |
| (3 days later) | |
| Arlo was diagnosed with an aggressive brain tumour after a spate of migraines shortly after he started college | Arlo was diagnosed with an aggressive brain tumour after a spate of migraines shortly after he started college |
| Students and businesses across the Isle of Wight are wearing "what makes them happy" in honour of a 17-year-old boy who has an aggressive brain tumour. | Students and businesses across the Isle of Wight are wearing "what makes them happy" in honour of a 17-year-old boy who has an aggressive brain tumour. |
| Arlo, from Cowes, was diagnosed with the grade 4 tumour in October after suffering from multiple migraines. | Arlo, from Cowes, was diagnosed with the grade 4 tumour in October after suffering from multiple migraines. |
| More than 70 schools and businesses are taking part in the event to help raise money for alternative treatment. | More than 70 schools and businesses are taking part in the event to help raise money for alternative treatment. |
| Arlo's father Alex described the support as "beautiful" while his friend Taylor said he hoped the mufti day would put a smile on his face. | Arlo's father Alex described the support as "beautiful" while his friend Taylor said he hoped the mufti day would put a smile on his face. |
| Arlo has been under the care of the NHS since his diagnosis but after months of research Arlo's family are now travelling to France, via a compassionate access scheme, for alternative treatment. | Arlo has been under the care of the NHS since his diagnosis but after months of research Arlo's family are now travelling to France, via a compassionate access scheme, for alternative treatment. |
| The money raised will support Alex and his family to take Arlo to France for alternative treatment every month | The money raised will support Alex and his family to take Arlo to France for alternative treatment every month |
| He recently started taking a drug called ONC20 and will have to travel once a month to Paris for a month's supply of the medication. | He recently started taking a drug called ONC20 and will have to travel once a month to Paris for a month's supply of the medication. |
| A fundraising page set up to support Arlo's family and this treatment has raised almost £75,000, with more than 2,000 people donating to the page so far. | A fundraising page set up to support Arlo's family and this treatment has raised almost £75,000, with more than 2,000 people donating to the page so far. |
| Alex explained the monthly cost of the treatment alone would be up to £10,000. | Alex explained the monthly cost of the treatment alone would be up to £10,000. |
| He said: "Our full time job has been the support and care of Arlo, and research to access him the drugs he needs. | He said: "Our full time job has been the support and care of Arlo, and research to access him the drugs he needs. |
| "That's only been possible, initially because of the support of frontline charities, and then the incredible support of the community to raise the funds we need. | "That's only been possible, initially because of the support of frontline charities, and then the incredible support of the community to raise the funds we need. |
| "The cost of the drugs is huge and totally beyond us and most families to fund." | "The cost of the drugs is huge and totally beyond us and most families to fund." |
| Alex said ONC201 was a drug with the potential to halt the progression and in some cases reduce the size of a tumour. | Alex said ONC201 was a drug with the potential to halt the progression and in some cases reduce the size of a tumour. |
| "That is giving time for more fun, more healing and the opportunity for more miraculous medicines and treatments to come along," he continued. | "That is giving time for more fun, more healing and the opportunity for more miraculous medicines and treatments to come along," he continued. |
| "Our hope is he is able to regain as much as possible of a normal teenage life - and that has started." | "Our hope is he is able to regain as much as possible of a normal teenage life - and that has started." |
| Arlo has recently returned to college having started the new drug ONC201 | Arlo has recently returned to college having started the new drug ONC201 |
| Alex said Arlo, who recently returned to Brockenhurst College in Hampshire, had chosen the theme "Wear What Makes You Happy" for the mufti day. | Alex said Arlo, who recently returned to Brockenhurst College in Hampshire, had chosen the theme "Wear What Makes You Happy" for the mufti day. |
| "It's beautiful because it comes from the same energy that Arlo is, he really enjoyed being a kid, he recognised that it was fun while he was a kid," Alex said. | "It's beautiful because it comes from the same energy that Arlo is, he really enjoyed being a kid, he recognised that it was fun while he was a kid," Alex said. |
| "When the campaign was launched there was an incredible reaction. I don't know if I can get across to anyone how huge it is to be able to take action having found something that will help. It is life changing." | "When the campaign was launched there was an incredible reaction. I don't know if I can get across to anyone how huge it is to be able to take action having found something that will help. It is life changing." |
| Alex said his son had really enjoyed his childhood and has so much joy for life | Alex said his son had really enjoyed his childhood and has so much joy for life |
| The original idea for the event came from Arlo's friend, Taylor, who said he "couldn't stop thinking" about how to help him. | The original idea for the event came from Arlo's friend, Taylor, who said he "couldn't stop thinking" about how to help him. |
| Taylor explained: "My mates were donating their own money but it didn't feel enough, so I thought about a mufti day at my school, and then I thought it would be amazing for all schools to stand with Arlo and show that even though we are young, we can help too. | Taylor explained: "My mates were donating their own money but it didn't feel enough, so I thought about a mufti day at my school, and then I thought it would be amazing for all schools to stand with Arlo and show that even though we are young, we can help too. |
| "Arlo is the nicest guy, he deserves our help. I hope this day fills him with a smile." | "Arlo is the nicest guy, he deserves our help. I hope this day fills him with a smile." |
| You can follow BBC Hampshire & Isle of Wight on Facebook, X (Twitter), or Instagram. | |
Previous version
1
Next version