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| Norfolk mum says: 'I want my son to be proud of his cancer scar' | |
| (1 day later) | |
| Saxon Read had a lung removed after developing a rare and aggressive type of cancer | Saxon Read had a lung removed after developing a rare and aggressive type of cancer |
| A woman whose baby son had a lung removed after being diagnosed with cancer said she wanted him to grow up "proud of what he has gone through". | A woman whose baby son had a lung removed after being diagnosed with cancer said she wanted him to grow up "proud of what he has gone through". |
| Saxon Read, from Briston, near Holt in Norfolk, was born with the genetic condition DICER1 syndrome, which increased the risk of tumours. | |
| At just a few weeks old he was diagnosed with pulmonary blastoma – a rare and aggressive type of cancer which mainly occurred in children. | |
| Now aged seven, Saxon's mother Cara said the "future looked good" but he would need regular checks until adulthood. | Now aged seven, Saxon's mother Cara said the "future looked good" but he would need regular checks until adulthood. |
| "He knows he's had cancer and he knows he has had one of his lungs removed, I have always been quite open about that," she said. | "He knows he's had cancer and he knows he has had one of his lungs removed, I have always been quite open about that," she said. |
| "The surgical scar is big and it gets bigger as he is growing, and I don't want him to be ashamed of it. | "The surgical scar is big and it gets bigger as he is growing, and I don't want him to be ashamed of it. |
| "I want him to be proud as he has gone through so much at such a young age." | "I want him to be proud as he has gone through so much at such a young age." |
| After having his right lung removed at just nine weeks old, Saxon had CT scans every year until he was four | After having his right lung removed at just nine weeks old, Saxon had CT scans every year until he was four |
| Ms Read said when Saxon was born he struggled to breathe and had to be resuscitated. | Ms Read said when Saxon was born he struggled to breathe and had to be resuscitated. |
| Doctors initially suspected a chest infection, bronchiolitis and trapped air, but he was diagnosed with cancer after a series of tests. | Doctors initially suspected a chest infection, bronchiolitis and trapped air, but he was diagnosed with cancer after a series of tests. |
| "They removed the right lung and left what they described as a 'sliver' at the top of his lung, so hopefully as he gets older it would stretch like a balloon and grow in size," Ms Read explained. | "They removed the right lung and left what they described as a 'sliver' at the top of his lung, so hopefully as he gets older it would stretch like a balloon and grow in size," Ms Read explained. |
| "It's such an ultra-rare genetic disorder and doctors told me they had only heard of five other cases." | "It's such an ultra-rare genetic disorder and doctors told me they had only heard of five other cases." |
| Saxon struggled to breathe from the moment he was born | Saxon struggled to breathe from the moment he was born |
| Ms Read said genetic tests showed she carried the DICER1 gene and out of her four sons, only Saxon inherited the condition. | Ms Read said genetic tests showed she carried the DICER1 gene and out of her four sons, only Saxon inherited the condition. |
| "When I found out it was essentially me that caused Saxon's cancer it really hit me hard," she added. | "When I found out it was essentially me that caused Saxon's cancer it really hit me hard," she added. |
| "I'm just a normal person but my baby had cancer, and you just don't think it's going to be you or your family." | "I'm just a normal person but my baby had cancer, and you just don't think it's going to be you or your family." |
| Ms Read said while Saxon had recovered well from surgery, he was told not to do extreme exercise due to having just one lung. | Ms Read said while Saxon had recovered well from surgery, he was told not to do extreme exercise due to having just one lung. |
| Doctors also said he would need regular checks until adulthood given the ongoing risk of further tumours developing. | Doctors also said he would need regular checks until adulthood given the ongoing risk of further tumours developing. |
| Ms Read describes Saxon as a "lovely boy" with a "good sense of humour" | Ms Read describes Saxon as a "lovely boy" with a "good sense of humour" |
| Saxon recently won a Cancer Research UK star award, given to children and young people who have shown courage while being treated for cancer. | |
| He was awarded a certificate, a £50 gift voucher and T-shirt. | He was awarded a certificate, a £50 gift voucher and T-shirt. |
| Cancer Research UK said about 380 children and young people in the East of England NHS region were diagnosed with cancer each year. | Cancer Research UK said about 380 children and young people in the East of England NHS region were diagnosed with cancer each year. |
| The charity's regional spokesperson, Patrick Keely, said: "A cancer diagnosis is heartbreaking at any age, but it can be especially hard for youngsters. | The charity's regional spokesperson, Patrick Keely, said: "A cancer diagnosis is heartbreaking at any age, but it can be especially hard for youngsters. |
| "Saxon is a real star who has been through so much at such a young age and it has been an absolute privilege to be able to celebrate his courage." | "Saxon is a real star who has been through so much at such a young age and it has been an absolute privilege to be able to celebrate his courage." |
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