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Warwickshire LGBTQ+ people asked to share end of life stories | |
(31 minutes later) | |
The project is led by Prof Michele Aaron, who specialises in film and television studies | The project is led by Prof Michele Aaron, who specialises in film and television studies |
A new film project will share the stories of people in the LGBTQ+ community who are facing the end of their lives, with the aim of improving the support available to them. | |
The project, funded by the University of Warwick, is looking for participants to share their experiences. | The project, funded by the University of Warwick, is looking for participants to share their experiences. |
The project lead, Prof Michele Aaron, said LGBTQ+ people were often reluctant to access end-of-life care and bereavement services because they feared discrimination. | |
"This project is all about harnessing the power of film to bring these really important stories into the world," she said. | "This project is all about harnessing the power of film to bring these really important stories into the world," she said. |
Prof Aaron, who previously worked on another series of films about people affected by terminal illness, said there was a lack of films depicting the reality of death - even more so for LGBTQ+ people. | |
"Hollywood tells us it's painless; it's white; it's heroic; it's straight. | "Hollywood tells us it's painless; it's white; it's heroic; it's straight. |
"And we don't have truthful, honest depictions of everyday LGBT experience in the world. We have sensationalist or exceptional stories. | "And we don't have truthful, honest depictions of everyday LGBT experience in the world. We have sensationalist or exceptional stories. |
"But what we're looking at is real-life stories." | "But what we're looking at is real-life stories." |
Helen Juffs said some people were reluctant to access care because of the need to come out to staff or other patients | Helen Juffs said some people were reluctant to access care because of the need to come out to staff or other patients |
The project is a collaboration between the university, queer film-maker El Jones, and the charity Compassionate Communities UK. | The project is a collaboration between the university, queer film-maker El Jones, and the charity Compassionate Communities UK. |
Support for those taking part will be provided by Helen Juffs, an end-of-life doula who offers spiritual and emotional guidance to those dealing with a terminal diagnosis, who herself identifies as queer. | Support for those taking part will be provided by Helen Juffs, an end-of-life doula who offers spiritual and emotional guidance to those dealing with a terminal diagnosis, who herself identifies as queer. |
She said people from the LGBTQ+ community were often reluctant to go into institutions such as hospices because of the need to come out to fellow patients or medical staff. | |
She described a gay woman in her 90s who was afraid well-meaning staff might pressure her to conform to feminine standards by offering to paint her nails or style her hair. | She described a gay woman in her 90s who was afraid well-meaning staff might pressure her to conform to feminine standards by offering to paint her nails or style her hair. |
"Your identity doesn't change just because you're dying," she said. "You're still from that community and you still need to be respected and treated accordingly." | "Your identity doesn't change just because you're dying," she said. "You're still from that community and you still need to be respected and treated accordingly." |
'Incredibly powerful' | 'Incredibly powerful' |
Ms Juffs said LGBTQ+ people also risked being subject to so-called microaggressions. | |
"It might only be a tiny thing in somebody else's mind, like assuming that you've got a husband if you're a woman, assuming that the person who visits you all the time is your brother or sister because they're the same sex as you," she explained. | "It might only be a tiny thing in somebody else's mind, like assuming that you've got a husband if you're a woman, assuming that the person who visits you all the time is your brother or sister because they're the same sex as you," she explained. |
"It's the raft of microaggressions that really make life uncomfortable in institutions." | "It's the raft of microaggressions that really make life uncomfortable in institutions." |
One of the participants is Trevor Yellon, a GP who struggled to find suitable bereavement support after losing his husband, Drew, to cancer in 2023. | One of the participants is Trevor Yellon, a GP who struggled to find suitable bereavement support after losing his husband, Drew, to cancer in 2023. |
"I needed someone who could understand why, as a gay man, some elements of my loss felt different and difficult - and I wasn't able to do that," said Dr Yellon. | "I needed someone who could understand why, as a gay man, some elements of my loss felt different and difficult - and I wasn't able to do that," said Dr Yellon. |
"This project... will not only create awareness of the needs of LGBTQ+ communities at end-of-life and during bereavement, but also give insight into our real lives, our monogamous, committed long-term relationships, and our care, love and grief." | |
"It's incredibly powerful to share your story and have your voice heard," added Prof Aaron. | "It's incredibly powerful to share your story and have your voice heard," added Prof Aaron. |
"But here specifically, the voice can then be heard by people who really need to hear it." | "But here specifically, the voice can then be heard by people who really need to hear it." |
Follow BBC Coventry & Warwickshire on BBC Sounds, Facebook, X and Instagram. | Follow BBC Coventry & Warwickshire on BBC Sounds, Facebook, X and Instagram. |
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