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Rare disease sufferer thanks lifesavers in Sark | Rare disease sufferer thanks lifesavers in Sark |
(about 1 hour later) | |
Deborah Haynes travelled by tractor, boat and aircraft to reach her care unit in the UK | Deborah Haynes travelled by tractor, boat and aircraft to reach her care unit in the UK |
A woman with a rare disease has thanked Sark's doctor and community responders for an "amazing evacuation process" which helped save her life. | A woman with a rare disease has thanked Sark's doctor and community responders for an "amazing evacuation process" which helped save her life. |
While she was on holiday in the island, Deborah Haynes, Sky's security and defence editor, became unwell with what transpired to be an ultra-rare disease, called atypical haemolytic uraemic syndrome (aHUS). | While she was on holiday in the island, Deborah Haynes, Sky's security and defence editor, became unwell with what transpired to be an ultra-rare disease, called atypical haemolytic uraemic syndrome (aHUS). |
Sark may be small in size, but the efforts made to get her to safety after falling ill were huge, according to the mother-of-three. | Sark may be small in size, but the efforts made to get her to safety after falling ill were huge, according to the mother-of-three. |
"You saved my life - at the very least you saved me from getting more sick and I am so grateful, so thank you very much," Haynes said to her rescuers. | "You saved my life - at the very least you saved me from getting more sick and I am so grateful, so thank you very much," Haynes said to her rescuers. |
Haynes said: "It was supposed to be a really amazing little break and unfortunately, rather than being an amazing break, my body broke. | Haynes said: "It was supposed to be a really amazing little break and unfortunately, rather than being an amazing break, my body broke. |
After a couple of days with no improvements in her condition, Mrs Haynes' husband decided to get help and contacted Sark's GP, Dr Bruce Jenkins. | After a couple of days with no improvements in her condition, Mrs Haynes' husband decided to get help and contacted Sark's GP, Dr Bruce Jenkins. |
"I describe it like an invisible storm inside my body and things are just not working, like my kidneys are shutting down and I was feeling incredibly sick and weak and desperately in need of help," said Haynes. | "I describe it like an invisible storm inside my body and things are just not working, like my kidneys are shutting down and I was feeling incredibly sick and weak and desperately in need of help," said Haynes. |
After a urine test suggested something was definitely wrong, she was taken by tractor to the port, where the island's marine ambulance, the Flying Christine, took her to Guernsey, before she was sent from the Princess Elizabeth Hospital to the UK for care. | After a urine test suggested something was definitely wrong, she was taken by tractor to the port, where the island's marine ambulance, the Flying Christine, took her to Guernsey, before she was sent from the Princess Elizabeth Hospital to the UK for care. |
"I went from a hotel bed in Sark to the intensive care unit of UCH in London in just over 11 hours which was incredible," she said, thanking medical staff and community responders for their "incredible response". | "I went from a hotel bed in Sark to the intensive care unit of UCH in London in just over 11 hours which was incredible," she said, thanking medical staff and community responders for their "incredible response". |
'Huge thank you' | 'Huge thank you' |
Harry Rauser, the first community responder on the scene, said it was clear to him right away that Mrs Hayes was in a very bad condition and needed help immediately. | Harry Rauser, the first community responder on the scene, said it was clear to him right away that Mrs Hayes was in a very bad condition and needed help immediately. |
Fellow responder Jim Martin said Dr Jenkins had called the marine ambulance at the right time as Mrs Hayes was already quite poorly and weak. | Fellow responder Jim Martin said Dr Jenkins had called the marine ambulance at the right time as Mrs Hayes was already quite poorly and weak. |
Mrs Hayes, who reunited with the responders on BBC Radio Guernsey, said she owed the pair a "huge thank you". | Mrs Hayes, who reunited with the responders on BBC Radio Guernsey, said she owed the pair a "huge thank you". |
"It's quite emotional hearing their side of the story," she added. | "It's quite emotional hearing their side of the story," she added. |
Mr Martin said: "It's good to hear that she's recovering remarkably well." | Mr Martin said: "It's good to hear that she's recovering remarkably well." |
Deborah is still receiving treatment at hospital as an outpatient | Deborah is still receiving treatment at hospital as an outpatient |
aHUS is chronic, rare disease that is estimated to affects fewer than one person per two million people. | aHUS is chronic, rare disease that is estimated to affects fewer than one person per two million people. |
Essentially, the disease affects the immune system and starts to attack the body's own blood cells, leading to further complications. | Essentially, the disease affects the immune system and starts to attack the body's own blood cells, leading to further complications. |
Between 10-15% of patients die in the early, initial stage with up to 70% progressing to renal failure and needing a life time of dialysis or dying. | Between 10-15% of patients die in the early, initial stage with up to 70% progressing to renal failure and needing a life time of dialysis or dying. |
The instance in Sark was Mrs Haynes' second experience with aHUS and she hopes to raise awareness of the disease. | The instance in Sark was Mrs Haynes' second experience with aHUS and she hopes to raise awareness of the disease. |
"I'm so lucky that the medical expertise is there to help treat this," she said. | "I'm so lucky that the medical expertise is there to help treat this," she said. |
Sark doctor and community responders save TV reporter | |
Follow BBC Guernsey on X and Facebook and Instagram. Send your story ideas to channel.islands@bbc.co.uk. | Follow BBC Guernsey on X and Facebook and Instagram. Send your story ideas to channel.islands@bbc.co.uk. |