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Grant went to bed every night, expecting to die 'Grant went to bed every night, expecting to die'
(1 day later)
Grant Goodwin from Lanarkshire is the only person in the world so far to have died of a new variant of CJD. Grant Goodwin, who was 30 and from Lanarkshire, is thought to have become the first person in the world to have died from a new variant of CJD.
In a paper in the medical journal, the Lancet, scientists say he had a different genetic make-up to all the people who have died from the disease so far, and that genetic code is far more common in the general population.
In an exclusive interview with the BBC, his father Thomas Goodwin spoke of Grant's diagnosis and deterioration and the effect that had on their family and friends.In an exclusive interview with the BBC, his father Thomas Goodwin spoke of Grant's diagnosis and deterioration and the effect that had on their family and friends.
Thomas Goodwin says his son's illness was heart-breakingGrant was a very happy-go-lucky person. Thomas Goodwin says his son's illness was heart-breakingGrant was a very happy-go-lucky person. He was a bit of a jack-the-lad kind of person, lived life, was a bit of a party animal, loved the good life.
He was a bit of a jack-the-lad kind of person, lived life, was a bit of a party animal, loved the good life.
He lived abroad and eventually settled in the Channel Islands with a smashing group of young chaps who we've come to know very well who came to see Grant when he was dying.He lived abroad and eventually settled in the Channel Islands with a smashing group of young chaps who we've come to know very well who came to see Grant when he was dying.
Very lovable, big chap and we thought the world of him.Very lovable, big chap and we thought the world of him.
Unfortunately cut down in life. Grant's illness and his death has affected a vast amount of people.Unfortunately cut down in life. Grant's illness and his death has affected a vast amount of people.
His girlfriend in Guernsey knew more about his early symptoms than we did because there was a total change in his character.His girlfriend in Guernsey knew more about his early symptoms than we did because there was a total change in his character.
The only way the doctor could describe it to me was the 'human form of mad cow disease'The only way the doctor could describe it to me was the 'human form of mad cow disease'
He became depressed and that wasn't Grant, and his depression went on to jealousy. So they went to see his doctor, who diagnosed and treated him for depression.He became depressed and that wasn't Grant, and his depression went on to jealousy. So they went to see his doctor, who diagnosed and treated him for depression.
In May, my wife Margaret went over and he was complaining about pains in his legs and in his head.In May, my wife Margaret went over and he was complaining about pains in his legs and in his head.
In August, 2008, Margaret went over again and the deterioration in three months was absolutely unbelievable.In August, 2008, Margaret went over again and the deterioration in three months was absolutely unbelievable.
He couldn't support himself, he fell twice when he was walking and he had to be supported. My wife phoned me and told me that I must arrange a flight for Grant and get him home as soon as possible.He couldn't support himself, he fell twice when he was walking and he had to be supported. My wife phoned me and told me that I must arrange a flight for Grant and get him home as soon as possible.
We thought it was a tumour, and his memory had started to go - his short-term memory was bad, he couldn't remember what he had had for breakfast.We thought it was a tumour, and his memory had started to go - his short-term memory was bad, he couldn't remember what he had had for breakfast.
When I saw him coming through arrivals a great knot came into my stomach. It was heart-breaking.When I saw him coming through arrivals a great knot came into my stomach. It was heart-breaking.
He went to bed every night, expecting to die He came through like a drunk man and the plan was to bring him home, but when I saw him, we took him straight to hospital.
He came through like a drunk man and the plan was for to bring him home, but when I saw him, we took him straight to hospital.
They eventually diagnosed him with variant CJD. It was heart-breaking for myself.They eventually diagnosed him with variant CJD. It was heart-breaking for myself.
The only way the doctor could describe it to me was the "human form of mad cow disease".The only way the doctor could describe it to me was the "human form of mad cow disease".
Grant couldn't take it in - because of his illness, five minutes after he was told, he had forgotten what he had been told.Grant couldn't take it in - because of his illness, five minutes after he was told, he had forgotten what he had been told.
It is thought Grant Goodwin incubated the illness from early childhoodIt is thought Grant Goodwin incubated the illness from early childhood
He went to bed every night, expecting to die.He went to bed every night, expecting to die.
If we had the choice we wouldn't have told Grant, but Grant didn't have any hope.If we had the choice we wouldn't have told Grant, but Grant didn't have any hope.
Once the illness set into Grant, the brain cells were slowly getting killed off and he became some else. He was seeing things, he was paranoid, it was absolutely unbelievable what that illness actually does to people. Once the illness set into Grant, the brain cells were slowly getting killed off and he became someone else. He was seeing things, he was paranoid, it was absolutely unbelievable what that illness actually does to people.
A week after Grant was diagnosed, one of the specialists agreed that Grant had variant CJD and they did some gene tests.A week after Grant was diagnosed, one of the specialists agreed that Grant had variant CJD and they did some gene tests.
And it was about three weeks after that, Prof Peter Rudge came up from London and it was him that told us that Grant was the first with his gene type in the world that's died of variant CJD.And it was about three weeks after that, Prof Peter Rudge came up from London and it was him that told us that Grant was the first with his gene type in the world that's died of variant CJD.
I just feel we need to get this out in the open, because people need to see the early symptoms.I just feel we need to get this out in the open, because people need to see the early symptoms.