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Dad gave up drinking for sick daughter's hospital | Dad gave up drinking for sick daughter's hospital |
(3 days later) | |
By Philippa Roxby Health reporter, BBC News | By Philippa Roxby Health reporter, BBC News |
As people stock up on alcohol to celebrate the festive season, spare a thought for one father who will not be touching a drop. | As people stock up on alcohol to celebrate the festive season, spare a thought for one father who will not be touching a drop. |
Shaun O'Connor is half way through a year of abstinence - and it is all because of his daughter Evie, who is two and a half years old. | Shaun O'Connor is half way through a year of abstinence - and it is all because of his daughter Evie, who is two and a half years old. |
Evie was born with Hirschsprung's Disease, a rare condition which prevents the bowel relaxing to allow waste contents to be passed. | Evie was born with Hirschsprung's Disease, a rare condition which prevents the bowel relaxing to allow waste contents to be passed. |
She has spent around 50 days in hospital during her short life, endured three operations and had her first surgery when she was just six days old. | She has spent around 50 days in hospital during her short life, endured three operations and had her first surgery when she was just six days old. |
In comparison, Shaun says his 'No beer for a year' campaign has been "a piece of cake". | In comparison, Shaun says his 'No beer for a year' campaign has been "a piece of cake". |
"I almost ordered a drink by mistake the other day but then I realised. | "I almost ordered a drink by mistake the other day but then I realised. |
"It's particularly hard at family occasions but I want to put something back after all the fantastic care Evie has received." | "It's particularly hard at family occasions but I want to put something back after all the fantastic care Evie has received." |
Sticky start | Sticky start |
Shaun wants his challenge to raise money for the neo-natal surgery unit at href="http://tchc.org.uk/" >Sheffield Children's Hospital where Evie spent many weeks being treated. | |
Just after she was born, there were signs that something wasn't right. | Just after she was born, there were signs that something wasn't right. |
She wouldn't latch on and she didn't pass any meconium, the sticky substance passed by babies in the first few days of life. | She wouldn't latch on and she didn't pass any meconium, the sticky substance passed by babies in the first few days of life. |
When doctors diagnosed Hirschsprung's Disease, they tried to wash out her bowel but, when it became perforated, Evie had her first operation. | When doctors diagnosed Hirschsprung's Disease, they tried to wash out her bowel but, when it became perforated, Evie had her first operation. |
Two more operations followed before Evie was on the road to recovery. | Two more operations followed before Evie was on the road to recovery. |
"By 10 months old most of the diseased bowel had been taken away. During most of this time she had a colostomy, so she was pooing into a bag connected to her bowel. | "By 10 months old most of the diseased bowel had been taken away. During most of this time she had a colostomy, so she was pooing into a bag connected to her bowel. |
"By the time she was one and a half, we were almost back to normal." | "By the time she was one and a half, we were almost back to normal." |
Her doctors had removed the part of the bowel affected by the disease and reconnected the healthy parts. | Her doctors had removed the part of the bowel affected by the disease and reconnected the healthy parts. |
Although Evie is now over all the blockages and constipation caused Hirschsprung's Disease, she is still prone to other health problems because of the condition. | Although Evie is now over all the blockages and constipation caused Hirschsprung's Disease, she is still prone to other health problems because of the condition. |
Chatty girl | Chatty girl |
She has recently been in hospital with a viral infection which also caused her breathing difficulties, and she had to play catch-up on things like potty training. | She has recently been in hospital with a viral infection which also caused her breathing difficulties, and she had to play catch-up on things like potty training. |
"Yet she is still very chatty, very sociable and brilliant with people. She is just a cheeky little girl who gets on with it," Shaun says. | "Yet she is still very chatty, very sociable and brilliant with people. She is just a cheeky little girl who gets on with it," Shaun says. |
It is has been much harder for her parents though. | It is has been much harder for her parents though. |
Shaun and his wife almost had to cancel their wedding as the stress of the early operations took their toll. | Shaun and his wife almost had to cancel their wedding as the stress of the early operations took their toll. |
But now that they are expecting their second child, a boy, the worry about the genetic condition recurring is starting to dominate their thoughts. | But now that they are expecting their second child, a boy, the worry about the genetic condition recurring is starting to dominate their thoughts. |
"We have no indication whether he could have it too. Doctors say he is unlikely to have it as badly as Evie, although it's more common in boys." | "We have no indication whether he could have it too. Doctors say he is unlikely to have it as badly as Evie, although it's more common in boys." |
In the meantime, they are concentrating on looking after Evie and Shaun is sticking firmly to the orange juice until the summer. | In the meantime, they are concentrating on looking after Evie and Shaun is sticking firmly to the orange juice until the summer. |
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