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Muscular dystrophy care in Northern Ireland is sporadic | Muscular dystrophy care in Northern Ireland is sporadic |
(about 6 hours later) | |
A major inquiry at Stormont later will hear that care for muscular dystrophy patients in Northern Ireland is 'sporadic' and needs to be addressed. | A major inquiry at Stormont later will hear that care for muscular dystrophy patients in Northern Ireland is 'sporadic' and needs to be addressed. |
Northern Ireland is also the only country in the UK without an expert health care worker in place. | Northern Ireland is also the only country in the UK without an expert health care worker in place. |
About 2,000 people live with muscular dystrophy in Northern Ireland. | |
Michaela Hollywood, who suffers from the condition, said people need more efficient care. | |
"We need a muscular centre or network so we can be treated better," she said. | "We need a muscular centre or network so we can be treated better," she said. |
"It will give us better health, a better life span and a better quality of life. | |
"Not only that, but it will save a bit of money along the way." |
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